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Why Sharing Cancer Big Data is Key to Personalized Medicine

Why Sharing Cancer Big Data is Key to Personalized Medicine | healthcare technology | Scoop.it

Personalized medicine is hoping to reach new heights thanks to the Cancer Moonshot, but won't get off the ground without a community-wide commitment to sharing big data.

 

The precision medicine community has long since recognized that sharing big data, including clinical records, genomic sequencing data, community-level health indicators, and research results, will be critical to making progress against cancer, neurodegenerative diseases, inherited conditions, and expensive chronic diseases like diabetes.

 

 

“Why is data sharing important? Because cancer is complex,” said Kenneth C. Anderson, MD, President-elect of the American Society of Hematology (ASH).  Anderson specializes in multiple myeloma, a blood cancer with treatment options that hinge on the genetic variances of each and every patient.

“We’re learning so much about cancer, and applying these insights to drug development has been incredibly fruitful,” he continued. “Now we have treatments that are specifically targeted to patients’ genetic mutations. Not only are these treatments more effective — because they correct a specific mutation — they also minimize harmful side effects that we see with traditional total-body anticancer medicines.”

However, the continued development of these treatments cannot be sustained without a commitment to data sharing, he added.

 

more at http://healthitanalytics.com/news/why-sharing-cancer-big-data-is-key-to-personalized-medicine

 

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What Consumers Most Want from Health Insurers’ Technology

What Consumers Most Want from Health Insurers’ Technology | healthcare technology | Scoop.it

People don’t crave the latest fitness wearable. Their overwhelming preference is for simple applications that provide and organize information

 

Startups in the insurance industry are investing feverishly to roll out products and services that will appeal to consumers. Taking a cue from the technology and communications industries, many are pursuing disruptive technologies that promise to revolutionize the healthcare experience — whether digestive sensors or systems that allow doctors to examine and treat patients via video.

 

But here’s the thing: Consumers aren’t ready for a revolution. They have far simpler demands and desires, such as an easier way to schedule doctor visits or the ability to get follow-up notifications on a mobile phone.

 

As a result, insurers that want to make the most of their investments in new technologies should focus their resources on developing simple digital products and services that align with their identities, strategic goals, and existing capabilities.

 

The idea that customers prefer simplicity may not come as a shock to those outside the healthcare industry. But it’s likely a revelation to those in the business, especially the insurers who have been investing heavily in telemedicine and other advanced features.

 

The survey revealed further insights into consumers’ preference for simplicity and a streamlined experience.

 

Some 97 percent of respondents said they would be willing to share personal health data and nonsensitive information if it would enhance their care, and only 3 percent ranked data privacy as the most important feature of a health plan.

 

About half of consumers want to involve both providers and insurers in their healthcare, and consumers are becoming increasingly comfortable with receiving wellness advice from health plans. That makes sense given the growth of so-called consumer-directed health plans, which put more responsibility for healthcare decisions and costs on consumers.

 

more at http://www.strategy-business.com/article/What-Consumers-Most-Want-from-Health-Insurers-Technology